NGOtiate is a Danish consultancy house
We are a rare hybrid and a pioneer in our field
About us
NGOtiate is a Danish consultancy house founded in 2007. We are a rare hybrid and a pioneer in our field:
Our services
be the change
Helping patient organizations, advocacy groups and digital communities
Driving Strategic Patient Engagement (SPE) to transform healthcare
At the heart of modern healthcare innovation lies Strategic Patient Engagement (SPE)—and we’re here to help your organization master it. From building the right strategy and frameworks to creating patient partnerships that matter, we’ll empower your team to embed SPE principles and practices and drive related impact and outcome.
Build SPE Understanding, Capabilities, and Frameworks We guide you in developing the operational infrastructure and expertise needed to deliver impactful SPE—from core principles to practical implementation and measurable success.
Tailored SPE Strategies That Drive Impact and Outcome
Whether you’re focusing on enterprise-wide initiatives, portfolio goals, or asset-specific programs, we’ll help you design SPE strategies that fuel success across R&D, business development, regulatory submissions, launches, and market leadership.
Connecting You with the Right Patient Partners
The right patient partnerships at the right time are key. We help you find and collaborate with the perfect individuals and organizations.
Ongoing, Expert Support—24/7
We’re always here to back you up, offering expert advice and hands-on support whenever you need it. Let’s elevate your organization’s approach to patient engagement, align it with your goals, and set you up for long-term success. Together, we’ll make SPE a driving force behind your innovation and leadership.
HOW WE ARE DIFFERENT
the partnering paradigm
Since more than a decade, disease experience experts (aka ‘patients’) have been involved in medicines R&D, informing, for example, the design of clinical trials and related strategies, as well as the development of patient education and support programs.
While truly collaborating with key patient opinion leaders and their communities at the very early stages of medicines R&D is still not ‘business as usual’ for pharma, the expectation and ask from the patient communities, however, is crystal clear: Engage us and our communities from the get-go in your R&D activities.
This ask is the foundation of e.g. the EUPATI initiative, as well as backed by the regulators in the EU and US, who, on an on-going basis, provide guidance to R&D-focused organizations on where and how to ensure that key decisions are made and bolstered on primary insights, advice and evidence from patients. The underlying advice is clear: Nothing about patients without patients.
Sources: Eupati.eu, fda.gov and EMA Europe
At NGOtiate, we specialize in empowering non-profits, patient associations, and healthcare organizations to make a bigger impact. Since 2007, our mission has been to amplify voices, secure funding, and drive meaningful patient engagement in healthcare innovation.
What sets us apart is our ability to bridge the gap between patients, advocacy groups, and research organizations, including pharma companies. We ensure patient perspectives aren’t just heard but are central to the innovation and development of new treatments, devices, and practices. From designing strategic alliances to scaling patient involvement and navigating EU and US regulatory frameworks, we focus on creating win-win solutions that drive progress and true impact.
We’re especially proud to offer free guidance for patients or families starting networks in areas where resources are lacking. By empowering grassroots efforts and fostering collaboration, we turn challenges into opportunities for change.
At our core, we believe that patient involvement isn’t optional—it’s essential. With us, you’ll find a partner who is as committed as you are to making healthcare innovation truly patient-centered.
The DOCUMENTED value of patient engagement
- Optimizing performance across value chain and ultimately end-user products (ref 1,6)
- Positive effect (e.g. financial effect) on clinical trial recruitment and retention (ref 2,3,4)
- Opportunity for researchers to learn from patients as disease experience experts (ref 6)
- Challenge the set way of thinking – often leading to improved research design, delivery, and dissemination (ref 6)
- Wider impacts of a changed innovation, research culture and agenda (ref 5)
Sources:
1: Wicks P, Richards T, Denegri S, Godlee F. Patients’ roles and rights in research.
2: Crocker Joanna C, Ricci-Cabello Ignacio, Parker Adwoa, Hirst Jennifer A, Chant Alan, Petit-Zeman Sophie et al. Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis
3: Boivin Antoine, Richards Tessa, Forsythe Laura, Grégoire Alexandre, Esperance Audrey, Abelson Julia et al. Evaluating patient and public involvement in research.
4: Levitan, Getz et al. 2018: Assessing the Financial Value of Patient Engagement 5 Staley, K. “Researchers don’t know what they’re missing”—the impact of patient involvement in research
6: Vat et. al (2019) Evaluating the “return on patient engagement initiatives” in medicines research and development
the value chain
The 'When' aspect - Applied strategic patient engagement
(Key examples)
